Information Exchange Through Taking Part in Blogs

Note: Because of this post, I started a new blog just to address issues with oat allergies. The new blog is called OatAllergy.com.

My (nearly) two-year old, Ella, has an oat allergy. She also has a dairy allergy and a peanut allergy. The difference is, a lot of people have those two. There is a lot of information out there and ingredients on packaging are strongly pointed out. For oat allergies, however, hardly any information is out there because it is so rare.

A while back, Brian Oberkirch made a post titled Organic Approach for Organic Social Media. You’ll see there that I left a long comment.

Two months later, this hits my inbox:

Hello Adam,

I saw a post that you put up for “whole foods, Organic Approach for Organic Social Media” and I noticed that you refered to you having a daughter that is allergic to oats. I have a friend with a little girl that just turned one and is severly allergic to oats. She is having a lot of trouble finding information on the oat allergy because it is so rare. Is there any information that you could share with me about any of your findings? It would be much appriciated! Thank you!

Since receiving this, I have been exchanging what I found helps in dealing with this allergy, first with the author of the email and now eventually the child’s mom directly. I just find it interesting that leaving a comment on a blog can lead to this type of information sharing.

I’ve also been toying with the idea of starting a blog just about the oat allergy since there’s *nothing* out there about it currently. Of course, if I implemented ever idea I’ve ever had… I would say here that I wouldn’t sleep, but I barely do that now!

Like I said… I have a (nearly) two-year old. ;)

80 Comments

  1. On November 4th, 2006 at 4:31 pm Erin Sly said:

    I am beginning to see that the oat allergy is a very uncommon one, as it is very hard to find information on as well. I was wondering if you would be willing to share what you have found out about Ella. My 13 month old son was just diagnosed with allergies to milk, eggs, corn, and oats. I have found lots of info on the first three, but not a lot on the last. My allergist also said he needs to avoid nuts because he has such a sensitivity to food. Any help would be greatly appreciated! Thanks

  2. On November 5th, 2006 at 10:59 pm Adam Darowski said:

    Thanks for commenting, Erin. I was wondering how you were able to find this little old post, but then I saw that my site comes up on the front page of Google when you search for “oat allergy”. Go figure. I talk about it once and I’m there. That shows how much… or how LITTLE information there is out there regarding this allergy.

    I’m going to email you some details. Thanks!

  3. On November 22nd, 2006 at 8:32 am Angela said:

    I have been trying the elimination diet for almost a year now. Just recently I have tried eliminating oats and I am almost positive that oats is what I am allergic to. I am almost positive that my 2 boys are also allergic to oats. I have searched all over the internet and have found nothing on oat allergy. I was wondering if you have any info that you can please share with me. Please. I feel this allergy has been dragging me and my family down for quite a while. Thanks so much!

  4. On November 22nd, 2006 at 2:00 pm Adam Darowski said:

    Thanks for stopping by, Angela. I’ve emailed you some information.

  5. On November 27th, 2006 at 8:46 am jason tolpin said:

    I volunteer time with a nonprofit org called http://www.kidswithfoodallergies.org with over 8,000 members worldwide.

    I’d recommend anyone with food allergies to visit and check out the recipe database, and parent’s forum for information.

    Jason

  6. On January 5th, 2007 at 2:29 pm Helaine said:

    Adam, I too would be interested in whatever you find on oats allergies. Suddenly, in middle age, I find that if I eat oats or anything containing it, I suffer shortness of breath, occasionally a tightness or rawness in the thoat (Goodbye, Honey Nut Cheerios!) I have a similar reaction to soy, something else with which I’d had no trouble prior to hitting my 40s. Decriptions of wheat allergy, celiac disease, and allergic asthma don’t quite fit.

  7. On January 7th, 2007 at 11:05 am Adam Darowski said:

    Hi Helaine, thanks for visiting.

    Since my two-year old is the one that has it, I don’t know much about it evolving over time yet. But if anyone else has some information, please comment. Thanks!

  8. On January 10th, 2007 at 7:50 pm Beth Cooper said:

    Hello,
    We just got my son’s allergy testing results with a positive to oat and milk (he’s 10 months and that is the only blood tests they have given him so far…all skin testing came back negative at first). Can you point me in the direction of some good information? He breaks out in a rash head to toe w/ just a little exposure to oatmeal. It would be much appreciated! Thanks! Beth

  9. On January 11th, 2007 at 1:48 pm Adam Darowski said:

    Hi Beth…

    I’ve emailed you some info. Thanks for stopping by. Man… I’d better get some sort of online resource off the ground.

  10. On January 22nd, 2007 at 12:06 am Maritza said:

    Hi Adam! I’m gonna search that site that someone posted to find forums and info on oat allergy, but can you e-mail me what you have? My 9 month old breaks out in rash all over from just a few teaspoons of oats….
    Thanks!! Funny how a little blog post can help folks out all over, huh?

  11. On January 30th, 2007 at 11:42 am Nichole said:

    I have a 16 month old son that has a terrible soy allergy… It was also a fluke that we ran out of oatmeal over the Christmas holidays, and he got better. We werent sure if he was allergic to milk as well, and that was the culprit, but we are now thinking oat allergy. I would be very interested in reading what you have re: oat allergy. Maybe oat allergy isnt that uncommon!?!

  12. On January 30th, 2007 at 1:30 pm Adam Darowski said:

    Hello Maritza and Nichole… It does sound like this isn’t that uncommon. I’m going to email everyone that has contacted me over the past few months about this and see what people would want to do at oatallergy.com. Time to get this off the ground.

  13. On February 4th, 2007 at 5:34 pm Rebecca said:

    Hi Adam,

    Can you email me (too) whatever info you’ve got? My 3-year-old gets hives if oats even touch him. (Found out the hard way with some “rash soothing” Aveeno baby product.) Blood tests say he’s also allergic to almonds and hazelnuts, for what that’s worth.

    Thanks!
    Rebecca

  14. On February 4th, 2007 at 10:25 pm Adam Darowski said:

    Hi Rebecca – We have Aveeno to “thank” as well. Ella has eczema, so we were instructed to give her Aveeno oatmeal baths. We ran out and gave her a couple regular baths, and surprisingly her skin got better (still eczema, but better). So, we pretty much connected the dots and laid off the oatmeal from all sides.

    Her oat allergy is the slightest of her three allergies (peanut and dairy being the others). It definitely seems to affect her skin more than if she eats it (never noticed any issues with giving her Cheerios).

  15. On February 7th, 2007 at 3:23 am Zandra Zarris said:

    Googling “Allerg to Oats” when I came upon your site

    I break out in hives (anyone see the movie “Hitch” with Will Smith), anaphylaxis bout (throat constriction–at least 5 major ones) over several years. Couldn’t pinpoint what caused it. I got several patch tests when I was a kid, and the results were always negative. I knew it was a food allergy, but didn’t know exactly which foods. First break out, when I was 15 and sipped some beer at a summer party. Within minutes, I broke out in hives. The heat made it worse. I found when I cooled off, I felt some relief. I developed eczema later on, but was only given cortisone creams. Someone told me that Aveeno oatmeal based lotions would help alleviate the eczema. Made it worse–which I thought was weird. I’ve gone to several doctors over the years, and no one has ever diagnosed an allergy to oats. I’m now in my early 40′s. Eating granola bars, oatmeal cereals–same effect. Within minutes of eating these foods, the itchiness starts (hands, ears, throat, etc). I find that exercise/heat make the reactions worse. I take Benylin immediately and usually within 1/2 hr, the itchiness subsides, but makes me drowsy. I carry Benylin allergy medicine everywhere I go with me, as well as an epipen–a prescription given to me when I had my last anaphylaxis bout. People laugh when I tell them that I think I’m allergic to oats. There’s nothing much out there about this.

  16. On February 7th, 2007 at 4:33 pm Adam Darowski said:

    Hi Zandra… have you seen a allergist about this or just a doctor? I just want to say… I’m definitely not a doctor, so I’m no expert. But it sounds like an oat allergy to me.

  17. On February 25th, 2007 at 9:03 pm Kellie said:

    I am a mother of a 6 month old. He has severe acid reflux, so was on rice cereal in his bottles since 2 months. Recently, we tried the single grain oatmeal to help with hard stools and he got a rash of small pink dots all over his face and swolen nose and eyes. Does this sound like a food allergy? If so, could someone please e-mail me anything they have on the subject. I would hate to reintroduce it. Thanks so much!

  18. On February 26th, 2007 at 10:10 am Adam Darowski said:

    Hi Kellie… I can relate to the small pink dots on the skin, but Ella didn’t experience the swelling. Then again, we are told her oat allergy is also a mild one. I can’t pretend to be a doctor, but it sounds like if that is the only time you see this result, it could be an allergy. I believe your child needs to be 11 months or so before an allergy test can be done, unfortunately.

  19. On March 2nd, 2007 at 4:08 pm Tina said:

    Like Kellie, my 5 month needed cereal but the rice was too binding for him. I tried oatmeal cereal twice (the baby kind) and each time resulted in violent vomiting. Has anyone experienced that? Could it be an allergy? The episodes were a week apart so I know it wasn’t a stomach bug.

  20. On March 6th, 2007 at 10:52 am Julie Grech said:

    I am so glad that I Googled “oat allergy”! Since my 24th week in my pregnancy I had had a nasty rash!! The rash was VERY itchy and it was almost impossible not to scratch! I went to my midwife in regards to the rash is they suspected that the rash was PUPPS (a common rash developed during pregnancy) and told me to just tough it out. The midwife suggested taking an Aveeno oatmeal bath to soothe my skin and itchiness…well….oh my goodness!!! Yikes!! Almost immediately after getting into the bath my skin got go crazy with itchiness!! It was terrible…and I was miserable. I went to see a dermetologist and he did a biopsy and it came back as eczema…which I’ve always had but on a very small scale. But after suspecting an oat allergy I cut out all oats from my diet and NO Aveeno products and Ta Da…no rash…it has completely healed!!
    I am going to go back to my doctor and ask to see an allergist and be tested so I will know for sure!!

  21. On March 6th, 2007 at 3:43 pm Adam Darowski said:

    Hi Julie. Glad this has helped. Seems Aveeno is the big “helper” in letting people find out about this allergy. Not a bad marketing idea for them… “Think you’re allergic to Oats? Our product will confirm it!”

    Okay, maybe not.

    But it certainly sounds like an oat allergy to me. Best of luck!

  22. On March 25th, 2007 at 1:35 pm Rebecca Fil said:

    I have been diagnosed with an oat allergy as well. I was eating granola and yogurt for breakfast for quite some time and had severe hives all over my arms, neck,etc. I finally went to the allergist and it was in fact oats. My question is, because of the potentioal for cross contamination in mills that grind grains, is it also wise to eliminate wheat , rye, etc.?

  23. On March 28th, 2007 at 8:01 pm shea said:

    I am mother of a 7 month old who has a milk intolerance/allergy. I am nursing her and was told to cut dairy from my diet. Being so restricted on what I could eat, I would eat oatmeal everyday for breakfast and sometimes for dinner. My daughter had chronic gas pains and was an exceptionally fussy baby. My doctor suggested giving her oatmeal instead of rice cereal and she broke out in a rash from head to toe. It was then that we realized she must have an oat allergy. The doctor said she’s been seeing it a lot more lately with children that also have a milk allergy.

  24. On March 28th, 2007 at 8:23 pm Adam Darowski said:

    @Rebecca – While I’m far from an expert on the matter, my guess would be that you can play it by ear and see if certain food seem to bother you. Again, I’m not an expert, but that’s my hunch. Of course, if your allergy is more severe, you’ll want to be far more cautious. But for those that just get a small rash, it may be worth the trial by error.

    @shea – Interesting. Ella has both (and a peanut allergy to boot), so I suppose we help support that theory.

  25. On April 12th, 2007 at 2:57 pm Tracy said:

    My 3 yr old son is allergic to corn & oats, we found out with skin patch testing. I’d really appreciate any information you have on oat allergy. Looking forward to seeing the website. Thanks

  26. On April 18th, 2007 at 2:48 am Julie Clarke said:

    I was interested to read all the entries from people about possible oats allergy. I am a 51 year old woman who has been diagnosed with Oral Allergy Syndrome linked to allergy to beech pollen. I have hayfever in the beech season, and related allergic reactions to many raw fruit, vegetables, nuts, some cheese and yeast. I have not had an anaphylaxic incident, but carry adrenaline just in case.

    Recently I have been trying ‘healthy’ oatmeal for breakfast, but have been suffering with terrible flatulence. Not my normal itching, blistering, throat closing, eye watering, symptoms…but wind!

    Do you think that this indicates an allergic reaction to oats ?

    Thanks in advance for any comments on this.

  27. On April 18th, 2007 at 7:56 am Adam Darowski said:

    Hi Julie… it’s really not consistent with anything I’ve heard about oat allergies, though I’m certainly not an expert. I’d check with your doctor or an allergist. Feel free to let us know what you find.

  28. On April 21st, 2007 at 11:23 pm Jeanette said:

    I am the mother of 1yr old twins and one is highly allergic to oats,peanuts,milk,eggs,wheat & tree nuts. Do you know of anwyhere to get some good recipies? I have found some that exclude some of the allergies but its hard to find some that exclude all. Thx

  29. On April 22nd, 2007 at 9:25 pm Adam Darowski said:

    Jeanette: Oh my, I’m not sure what to say. We find a hard enough time with milk, oat, and peanut. Wheat is a tough one. But one saving grace you have is soy.

    I don’t know of any resource for recipes, but if anyone does, please post them. Your best bet may be experimenting. Find something close and do some substituting. Soy margarine here, leaving out the eggs there… might be able to come up with some.

    I wish you luck.

  30. On May 14th, 2007 at 1:00 pm Jackie said:

    I would be very interested in any information you have about Oat allergies. My son seems to be allergic to oats. We thought it was milk at first.

    Thanks so much!

  31. On May 17th, 2007 at 5:39 pm Jason said:

    We are searching for answers for our 11 month old’s reflux/constipation/nightime extreme gas? My wife asked me to google oat allergy before I left work. He doesn’t get the hives but is very gassy and constipated and is on two different reflux medicines. Could our real problem be an oat allergy? If you had any info I’d love to see it. thanks.
    jason

  32. On May 17th, 2007 at 10:36 pm Adam Darowski said:

    Hi Jason:

    Not sure how much I can help, but Ella experienced those symptoms with her MILK allergy, not oat. Her oat symptoms were more of the skin rash variety. It seems the symptoms can vary, though, so it can’t be ruled out.

    Good luck!

  33. On May 26th, 2007 at 10:30 pm Lori said:

    Well,
    I think oatallergy.com(org) would be great. It sounds like there is a big interest in information that is not out there. My now 3yr old was diagnosed with oat allergy at 2 when I asked her allergist (she is also allergic to egg,peanut,milk,soy,beef) if she would test her for oats because I had kept a log of her eating and behavior pattern and traced the common factor to oats. The doctor scoffed at the thought and ordered the test. The only symptom that my daughter had was tired,crankiness after eating oats-but she is high on the allergic scale. That is very interesting and alarming at the same time.

  34. On May 26th, 2007 at 10:34 pm Lori said:

    One more-for Jeanette. There is a great book Cooking Free by carol fenster. It is geared toward gluten allergy, but addresses most major allergies and is the best one I have found.

  35. On May 27th, 2007 at 5:31 pm Jennifer said:

    I’m so glad I found this!!!! We are not new to allergies my 4 yr old is allergic to milk, peanuts, stawberries, tomatoes, and more but oat allergy is something new for me. My son 5 months old has had oatmeal twice and both times he vomited several times. I tried it once a month ago and the second time was this weekend. I cannot find anything on the net on this and if in fact this is an allergy. And if he is allergic to oats does that mean he could also be allergic to wheat? Thanks for ANY info.
    Jennifer

  36. On July 3rd, 2007 at 7:32 am Judy said:

    A little bit different – I am over 50 and have developed varicose eczsma on my legs over the past 2-3 years – mainly in winter. This year i noticed that it erupted every time I ate oatmeal. Have stopped having oatmeal and itching has cleared up.

  37. On July 8th, 2007 at 9:05 am Kandy said:

    I’m a 48 year old women who about 5 years ago started to get physically sick every time I ate anything with oats in it. Cheerios, oatmeal cookies, granola bars, etc. I use milk on other cereals and have no problem. I do not get hives or any skin condition. I get and extremely severe stomach ache and diarrhea. I know it is the oats. But, it sounds like this is unusual with an oat allergy. Could there be different allergic reactions depending on the person or age.

  38. On July 19th, 2007 at 11:29 pm JM said:

    I am 45 and have just really connected extreme pain and cramping and runs with oat cereals. Also been having funny itchies and hive-ish bumps here and there that I can’t find a source for (i.e., no mosquito bites). I don’t seem to have the problem with wheat or rice. I, too, started googling and came up with nothing but this site. But the amount of posts make me believe this is what my problem is and I will start eliminating all oat products and see what happens. I also have sensitivities to eggs and dairy and soy as has been mentioned by the others on this site. Very interesting…

  39. On July 20th, 2007 at 1:07 am Adam Darowski said:

    I’m really glad this post has helped get some possible answers for people. I’m not authority on the subject, so I’m uneasy attempting to answer questions, but it’s nice to see that people can spot trends and see if they could be experiencing the same thing.

    For those with younger children that have oat allergies, we found out recently that Ella actually outgrew her oat allergy. That leaves her with (just) milk and peanuts. So, it is encouraging that it can evolve like that. We’re hoping she grows out of the milk one, too. That one’s the really tough one (her strongest, too).

    But it seems that man, many folks in their 40s are starting to develop this allergy. Very interesting trend. Not sure what it means.

    Thanks for taking part, everyone!

  40. On August 1st, 2007 at 10:24 pm Nia Edeline said:

    My 4 months baby is highly allergic to peanuts, milk,eggs & seafood. I am nursing him and I eliminate all those foods from my diet. Recently I have an oatmeal as breakfast and not long after my baby broke out a rash in his head. Please inform me any information regarding this oat allergy. Thanks so much!

  41. On August 23rd, 2007 at 8:26 pm Cathy said:

    Hi Adam,

    We suspect my son has an oat allergy. We had to take him off oat cereal to get him to take more formula and we switched to Nutramigen. It’s been three weeks and I was pleased that his skin had cleared up. We introduced oat cereal three days ago and the rash on his chin and the side of his cheeks came back. We’ve taken him back off of it and are trying vegetables now instead. I’ll be sure to ask about oat allergy at our next appt.

    Do you mind e-mailing me the information you have? Thanks for sharing your story! It’s amazing what one can find with the power of Google. :)

    Thanks!!!

  42. On September 7th, 2007 at 10:23 am Caroline said:

    Our 10 month old was just diagnosed with allergies to oat, egg, wheat, nuts and peas. What an eye-opener. Filling the bird-feeder some seed fell out and I noticed there were peanuts! And now reading here I’m rolling my eyes about the Aveeno experiences. How am I EVER going to keep all this stuff away from the poor little one?! Anyway, please send your information about oat allergy. Thank you – you’ve helped so many people!

  43. On September 11th, 2007 at 8:01 pm Vicki said:

    Wow — I’m so glad I came across this! My son, who is almost 6 months almost certainly has an oat allergy — rash and bloody/mucousy diahreha and a head to toe rash the first attempt at oatmeal, and violent vomitting the second. Then I remembered that when he was about 2 months old I put Aveeno Baby sunscreen on him and he had a terrible reaction, but I assumed then it was a chemical — now I know it was the oats!

    He also was suspected of having a milk allergy as well, and I eliminated it from my diet. (He’s breastfed).

    We go to the allergist on Thursday, so we’ll see what he says.

  44. On September 12th, 2007 at 8:51 am Adam Darowski said:

    Cathy & Caroline:

    All the information I have is basically here. There’s a lot of discussion and really… not all that much more out there.

    Vicki:

    Good luck and let us know. Sounds like you’re figuring it out on your own though.

  45. On September 13th, 2007 at 11:15 am Vicki said:

    Well, we did skin prick testing this morning — NOT ALLERGIC! I;m stunned, given his reaction, but pleased. Negative for everything he tested for — milk, eggs, wheat, soy and oat.

    Of course, that doesn’t explain his reaction. The allergist is a bit stumped, but says that perhaps he has an intolerance for it right now. Avoid it, he said, and we’ll revisit it again.

    He did say we could also try the scratch test with some of the actual oatmeal we used, as opposed to the drops they have.

    Very interesting!

  46. On September 27th, 2007 at 1:53 am Brian Zuber said:

    Greetings!

    About a year ago I did a search for “oat allergy” and got nothing! Well, I did get plenty of information for celiac disease but I can eat all the wheat and drink all the beer I want with no problem.

    Up until about 3 years ago (I’m 28 now) I lived off of oatmeal. All of a sudden I started having the most horrid, unrelenting heartburn I’ve ever experienced after eating anything with any sort of oat product. Oats, oat flour, you name it. I’m tempted to eat just a small spoon of oatmeal but it will cause me serious pain for hours. The last bowl of oatmeal I ate, which finalized my search for the problem ingredient, put me down for three full days.

    I have no problems touching it, no rash, no hives, nothing. With the exception of the heartburn I have no problems with it.

    I called Quaker and they told me that they had no knowledge of oats causing heartburn; in fact they say that it actually helps cure it. They also said they had no information about an oat allergy.

    I have yet to try taking benedril afterward. I’ll give that a shot soon and see if that helps… if that works I’ll be one HAPPY camper! Tired a lot perhaps, but none the less happy! I’ll also come back and post any good news.

    A side note, I have not been ‘tested’ for the allergy as I have not had health insurance since I ran into this problem. Perhaps that will come soon enough and I can get some real answers.

    I’m glad I made a search again for this; even more glad I’m not alone with this.

  47. On September 30th, 2007 at 5:17 am Michelle said:

    Our four year son has just been tested positive for an oat allergy. Help! Is there any information that you can pass on? He also has EE (an inflamation of the esophagus making it difficult to swallow foods). The doctors believe it may be caused by a food allergy though they can’t be certain.

  48. On October 20th, 2007 at 7:07 am Welcome to OatAllergy.com « OatAllergy.com said:

    [...] ended up posting about the email discussion on my own blog. That post yielded dozens of comments of parents looking for more information about [...]

  49. On October 30th, 2007 at 9:36 pm Janet said:

    My 17 month old daughter was also just diagnosed with EE (Eosinophilic Esophagitis…apparently uncommon at such a young age), and we are treating with a steroid. She also tested highly allergic to oats and eggs, and is lactose intolerant. I too am searching for information about her oat allergy. If anyone has access to a list of foods that are okay to eat and not okay to eat, that would help. In particular, I don’t know what to feed her for breakfast anymore.

  50. On November 7th, 2007 at 1:12 am Tara said:

    Just thought that I would leave some tips for parents. I too have a child with an oat allergy. She cannot have any contact with it. When reading ingredients lists please remember that Avena is another word for oats. Believe it or not Mr Bubbles, the bubble bath makers, contains oats!! Found out the hard way. My daughter has so many food allergies that we carry a card with us to restaurants that we give the waiter to forward on to the Chef/cook regarding her allergies. This has helped us so much!! It is a simple card that reads “My 2 year old daughter has the following food allergies: soy, tree nuts, oats, pear, pineapple, eggs, and peanuts. Is there anything on the menu that the Chef can recommend that does not contain nor has come in contact with these foods?”

  51. On December 1st, 2007 at 7:06 am Brenda said:

    Hi,

    I googled “can I use Aveeno if I am gluten (oat) intolerant?” and I came upon your site. I just received the results of a gluten sensitivity test that confirms that I will have to stay away from all things gluten. I’ve had psoriasis for over 35 years – for the past 2 months I have been on an elimination diet and have removed gluten (and a lot of other things!) from my diet. My symptoms of muscle cramping, weakness and inflexibility and joint pain have cleared ocmpletely – quite a thrill as I had been experiencing terrible pain for many months. I also went off the very toxic drug that had been recommended for the psoriasis – I could no longer reconcile the risk to my liver. I hoped that on this gluten free diet, my skin would clear however, although the psoriasis has “changed”, it has not cleared and if anything, my skin is more irritated (in an unpsoriasis sort of way – red and inflammed). It finally occurred to me today to question the Aveeno products that I use – lotion, shower and bath product. So, I googled and came across your site and I think perhaps I am on to something. So, I’ll stop the Aveeno (with all other sources of gluten gone, my sensitivity to gluten will be heightened now since I am no longer on overload) and see if that is the culprit. As I said, my skin condition has changed and this new irrititation is a clear indicator that something is going on.

  52. On December 16th, 2007 at 6:36 pm Shaunna said:

    OK. Thanks for this message board. I found that #6 is the most relative to my allergy.

    #6 January 5th, 2007 at 2:29 pm Helaine Says:
    “Adam, I too would be interested in whatever you find on oats allergies. Suddenly, in middle age, I find that if I eat oats or anything containing it, I suffer shortness of breath, occasionally a tightness or rawness in the thoat (Goodbye, Honey Nut Cheerios!) I have a similar reaction to soy, something else with which I‚Äôd had no trouble prior to hitting my 40s. Decriptions of wheat allergy, celiac disease, and allergic asthma don‚Äôt quite fit.”

    My allergy just seemed to appear. I am 23 years old, and I have noticed these symptoms for about 2 years. Not only do I get the shortness of breath and raw, “froggy” throat, my abdomen swells outward, well beyond my normal size. Also, my shortness of breath comes with an awful dry cough, that sounds like whooping cough. With the exception of Helaine, it seems nobody else has these symptoms. Is it the oat, or something used in the process of milling the oat? Any help would be incredibly appreciated. Thank you!

  53. On December 29th, 2007 at 12:21 am Katie said:

    I too, have been diagnosed with a strong oat allergy. At 25, I went in for a skin prick test and found out that I am allergic to dozens of foods.

    Ouch!

  54. On January 7th, 2008 at 2:21 pm Ashley said:

    Hi Adam! I have 7 month old twins who are exhibiting oat allergy symptoms (eczema,severe vomiting upon eating oats). I would appreciate any information you have. Thanks!

  55. On February 11th, 2008 at 5:47 am Jonny said:

    I identified oats as the cause of frequent nausea, heartburn and overwhelming fatigue about a year ago. Cut them out of my diet and, hey presto, no more symptoms. However, lots of coughing and sneezing remained which has now been identified as dust and dust mite allergy. Saw the specialist last week who basically said that nobody really understands allergies (I mean oats & dust? Why those together?) Even less do they understand how you can grow out of an allergy or, as in may case, into one. Nobody else in my family (parents, siblings, children) has an allergy.

    I am a vegan and have been for 14 years so I guess it’s possible I have the egg and milk allergies that have been mentioned elsewhere – thank goodness it wasn’t soya and beer though – that would have been tricky!

    I was amazed that oat allergy is so rare though – even rarer than vegans it would appear!

  56. On February 28th, 2008 at 7:46 pm Joseph said:

    I had an experience several years back after eating granola with milk for breakfast. About an hour or two after breakfast I ended up with a blinding headache and really tight phlegm in my chest. The headache put me out of commission from the pain, and I found that I had blind spots in my vision to the point where trying to read the label on a tylenol bottle was impossible, as I could only see parts of the word. I tried eating the same breakfast a few months later and had the exact same results, so I stopped eating raw oats altogether.

    Yesterday morning I made oatmeal for breakfast, with powdered milk, and later thought I was coming down the flu. I was getting cold sweats, a cough, and a blinding headache that I figured was from sinus pressure. Until I got the same thing with my vision that I had after eating the granola. I figured that I must not have cooked the oatmeal enough, as I had never had problems with cooked oats before or with any cold cereals.

    The headache alone is enough for me abandon oats altogether, as it’s an experience I don’t want to repeat.

    The thing with my vision was really weird as it didn’t matter which eye I looked out of.

  57. On March 3rd, 2008 at 8:03 pm Theresa said:

    I have had allergies all my life, eggs, dairy, chocolate, tomatoes, you name it. I am now 56 and under a Homeopatic Physician which has me off of everything including wheat, however, I am still having terrible burning eyes, nostrils, headache and bad post nasel drip. I didn’t have oats for 2 days and it went away. I was relieved to learn there are others with this very wierd allergy. I guess I will have to have cooked fruit for breakfast because there’s nothing left.

  58. On March 9th, 2008 at 6:13 am Pam said:

    Hi Adam – I found your website by googling oat allergy. My 2 year old daughter had a skin prick test came out positive to milk, egg, chocolate and oatmeal (not oats :). Thankfully she just has eczema as a reaction. I did go check your oatallergy.com website and did not find a list of what to look for on labels. If you could please email me any information you have, I would be most grateful. Now I just got to figure out what to serve her for breakfast! Thanks so much, Pam

  59. On March 15th, 2008 at 1:21 pm vera said:

    Hi Everyone, yes I have been suffering from increased Asthma, tightening and tickling of the airways,sore throat, post nasel drip,I have always had asthma but not like this, realised after 18 months it could be a food allergy then noticed this had been occuring since eating porrige oats for breakfast, left them off for a week and began to improve, tried them again this morning, I am back to square one, just got to find out all foods with oat ingredients. I have also cut milk out of my diet two months ago. Thank you so much for this site I realise I am not going mad after all

  60. On March 31st, 2008 at 1:39 pm Neil Cotterill said:

    For awhile I thought I had a gluten allergy. Several tests determined that was not the case. Recently I’ve possibly narrowed the problem down to oat-based foods, especially cereals. No wonder I usually skip breakfast. I list of ingredients to avoid would be very helpful. Thanks!

  61. On April 3rd, 2008 at 2:09 pm Nari said:

    Adam, Could you send me the information about oats allergy? There isn’t too much information about oats allergy so any inforamtion would be helpful.

    My 9 months old daughter is allergic to oats. She has been getting bad rahses on her face and body for the past two months. Now that we found out that she is allergic oats, we stopped feeding her oatmeal and stop using aveno baby product. However, her rashes are still coming back. She is not allergic to milk, but as someone recommended above, I am going to try the hyproallergenic formuala to see if that works. Thanks for the advice.

  62. On April 21st, 2008 at 6:50 pm Mavis said:

    I am a mom of a 6 month old boy who I believe has an oat allergy. I exclusively breastfed until almost 5 months when I started him on rice cereal. He had rice for 2 weeks with no problems. I started oatmeal and 3 days later he had a rash on his legs. Long story short, he’s had it for about a month and I stopped oatmeal the day after the rash. It will start to clear up and then flare up again, each time looking worse. It has also spread to his arms. In talking with the doctor, I think he is allergic to the oatmeal I am eating since I’m still nursing. I have eliminated oats from my diet, but it’s only been 2 days since I realized it, so the rash has not cleared yet. We have another appointment in 4 days with doctor. But I would appreciate any information you can give me since there is so little on oat allergies! I’ve searched the internet for almost a month and just today came upon this site. Does an oat allergy lead to more food allergies? That’s my main question. Thanks!

  63. On April 25th, 2008 at 1:02 pm Mozelle said:

    Like a few remarks I’ve seen, I became aware of my allergy when I turned 50. I had a couple of anaphalctic attacks and several cases where my throat just felt tight, not closed. My blood tests revealed a high allergy to oats – nothing else. My doctor put me on a gluten free diet but I’m not allergic to gluten. I am craving good bread!!! Is anyone aware of a safe – oat free bread available with gluten in it?
    I would love a piece of soft bread for a change.

  64. On April 26th, 2008 at 8:49 pm Adam Darowski said:

    Mavis…

    That definitely sounds like an oat allergy. I hope the rash has started to clear up… we had a similar experience when we stopped giving our daughter the Aveeno bath.

    My daughter had oat, peanut, and dairy allergies. I’m not sure if that means oat allergies tend to come along with others. On the plus side, she has grown out of the oat and peanut allergies.

  65. On April 26th, 2008 at 8:52 pm Adam Darowski said:

    Mozelle…

    I’ve heard that before… when positive for an oat allergy, limiting gluten. I have no idea why, though. Our daughter’s diet contained gluten and she was fine with it. Any ideas why they are keeping gluten from you?

  66. On May 6th, 2008 at 12:46 pm Mozelle said:

    Adam: I think it is because wheat is so often processed in such close proximity to oats. What I was looking for when I found your website was someplace that would know of a company that isolated wheat so I could feel confident that it would have no chance of being contaminated by oats.

  67. On May 20th, 2008 at 10:42 am Cary said:

    We think our 9-month old son could be allergic/insensitive to oats. We started him on solids at 6 months. He took rice cereal and oatmeal cereal and other stage 1 foods without problem. Then at 7 months he got the stomach flu from his 3-yr old sis. About 1 week after the flu, we tried to resume solids and fed oatmeal cereal and pears which he vomited. The Dr. thought it was too much volume, maybe stomach still recovering. About 1 week later we tried again with oatmeal cereal and prunes since he has constipation and he takes prune juice OK, but 2 hours later he vomited. This time Dr. thouught maybe prunes? About one month later after successfully feeding pears, bananas, peas, we tried oatmeal cereal again and he vomited violently. Dr. thought maybe stomach flu again, but I was pretty sure it was the oatmeal. I stopped giving any cereal and for 6 weeks we were great. He’s eating fruits, veggies, chicken and beef in jars and takes milk-based formula–no problems. We saw the Dr. two days ago and she said try the oatmeal again, also give prunes due to hard stools. Yesterday I fed him regular meal (chicken, apples, pears from jar) and gave 1 teaspoon of prunes from baby jar and (5) oat O’s (an all-natural Cheerio). 2 hours later he vomited violently. I am so fed up with this trial and error at poor baby’s expense. Does anyone have any suggestions/help for us?? The Dr. and nurses say they’ve not experienced vomiting after oatmeal cereal. Thank You!!

  68. On May 29th, 2008 at 11:41 am Chandler said:

    Cary,

    I have had a similar experience with my 7 month old. When we introduced solids at 5 months, she was fine with a little bit of oatmeal. Then she vomited while sleeping after we gave her a more substantial amount. We thought it was due to her increased rolling over but stopped the oatmeal cereal for 2 weeks anyway. When we re-introduced the oatmeal at 6 months, she vomitted very violently. Just yesterday, I gave her a small service of bananas, apricot & oatmeal mixture. This morning, I discovered that she had vomited while sleeping last night. Our doctor is also unfamiliar with an oat allergy.

    Is there a list of non-oat foods? Thank you anyone for your help!

  69. On May 29th, 2008 at 11:56 am Adam Darowski said:

    Cary: At around 11 months you should be able to have oats tested by an allergist. I think you’ve pinpointed it… sounds like the oats causing the issue.

    Anyone else noticed that there are just FAR more food allergies than there used to be? I’m sure we’re going to see more cases of less common ones, such as oats. The “old school” doctors may just think “bah, nobody’s allergic to oats”, but it’s a while new world.

    Chandler: It’s tough because oats are not among the allergens companies are specifically required to call out on labels (like milk, wheat, egg, etc.). So, it really takes a LOT of label reading. There are usually alternatives, you just need to hunt a bit. Rice cereals, wheat breads, and the like will become your friends.

  70. On September 11th, 2008 at 8:31 pm Joyce D. said:

    Do any of you experience breakouts on particular parts of your body?

    I think I have identified oats as the culprit of breakouts on my butt. (not exactly pimples…but like infected spots that get a little swollen. When I was in my 20′s I was eating a very whole grain diet including oats…and at some point gave up oats and these breakouts disappeared for probably 15+ years until just recently when I was dying for homemade granola. Suddenly – after so many years of for the most part staying away from oats…the breakouts returned. I am sad as the granola is SOOO good. I am on the other hand happy that I think I identified that particular allergy and wonder if there are accompaning symptoms (energy loss…etc.)

    thanks

  71. On October 14th, 2008 at 3:17 pm Nicola M said:

    I have always suffered from food allergies and related tiredness but they come and go and are definitely exacerbated by stress. This year has been a tough one and recently my daughter came home to stay a few weeks ago and loaded a packed of organic oats into my shopping trolley. I became hooked on the stuff. My exhaustion has been so bad I have been sleeping 15 hours a day and unable to do any normal daily activities. Depression followed very quickly as I lost all motivation. Through the haze I realised that every time I ate the oats, I had bad joint pains coupled with bloating and stomach/bowel problems. I found your website and having read about other people’s oat allergies, I took an anti-hystamine and my head started to clear. The next day I avoided the oats and took another anti-hystamine. This was only 3 days ago. Today I am still feeling slightly tired but have carried out normaly daily activites and have only had a quick afternoon nap without the need for an anti-hystamine. I am looking forward to tomorrow as I am sure I will feel even better. It was definitely the oats that were causing the problem and I have found with allergies I always crave the very thing that will give me a bad reaction.

  72. On October 23rd, 2008 at 1:28 am Mom of 2 said:

    Adam,
    I guess that is who runs this forum?
    I have two kids one is my son Michael who is 5 in a half and nicky who is 3 in a half. Both have exzema my son has asthma.
    I had my son tested when he was about a year old through is blood for some food products they said he was fine. He used to progectile vomit so I switched to soy. He stopped liking soy and just would eat certain cheeses. He is a very big boy about 60 pounds..we ended up at an allergist last year due to his asthma and he gave him singular did no tests. Well over the past year my daughter had some allergies so the dr decided to have both go for follows with the same allergist.
    sorry just thought I would give you a quick bio \.
    So This was last friday he refused to test my daughter saying she was to young but said after looking at her she and my son both have chronic sinus infections. he did however test my son. The test showed he is allergic to bannanas oats lamb hazlenuts and corn also cats rusian thistle and mites and something else lol I forgot.
    Then after he tells me this he said he did not buy it???? So I am so CONFUSED my son is very vocal that is stomache hurts his mouth hurts something ALWAYS hurts or itches. After reading everybody’s comments I do not know what to think! PLEASE someone with info email me or send me info I feel so confused if the dr does not buy a scientific tests should I? it was +2 reaction whatever that means???? I can be emailed at amberisspoiled@yahoo.com

  73. On October 23rd, 2008 at 11:33 am Adam Darowski said:

    @Nicola M: Doesn’t it always seem that way? I’m glad to hear you’re doing better, though! My daughter has outgrown her oat allergy but has retained her milk allergy. Of course, she loves things like yogurt and cheese‚Äîthank goodness for soy products. Tough to find an oat replacement, though. Really the only option is missing out on some good stuff. :(

    @Mom of 2: I don’t understand how the allergist could shrug off a positive test like that. Any chance you can get a second opinion?

  74. On April 20th, 2009 at 5:00 pm Katy said:

    Hi There,

    Nice to see we’re not alone in this. My 2 1/2 year old son just tested positive for a number of allergies: dog, pineapple, oats, and egg white being the top ones. Looking back at his excema and other skin rashes as an infant, I’m pretty certain that oatmeal was to blaim for most of them. His face was totally clear until he began eating oatmeal cereal at 5 1/2 months. As far as we can tell, skin rashes and overall itchiness seem to be his symptoms. No vomitting or diarreah. I’ve wondered why he’d never finish his granola bars when he would devour most any foods, especially sweet ones. I think he knew they made him feel bad. I’m curious to see how he does when we eliminate the oats from his diet. I think it’s going to be pretty challenging though with having to read all the food labels. I’ve been surprised at some of the things that have oats in them.

  75. On June 8th, 2010 at 9:10 am Katie said:

    I’m so glad I found this online. I’ve just been told that I am allergic to peanuts, tree nuts, barley, oats, rice, tomatoes, oranges, celery, and sensitive to dairy. The Oats is by far the worse one because I can’t find any information on this. I have been a peanut butter and jelly on oats breads and dairy and rice kind of girl my whole life and now at 25 I have to change my entire diet. Any suggestions? Thanks

  76. On June 8th, 2010 at 9:26 am Adam Darowski said:

    Hi Katie:

    A while back, I started a blog at http://oatallergy.wordpress.com/ and have a few posts there dealing with oat allergies. My daughter has actually since outgrown the oat allergy, and my son has a whole other set of allergies, so it kinda went on the backburner.

    Nut-free products are pretty easy to find. Tomatoes, oranges, and celery can be pretty easy to avoid, too. But oats are tricky, since you need to read every ingredient of every product. Products are required now to list popular allergens (like Soy, Milk, Peanuts, Eggs, etc.) but oats is not among those. So you need to decipher for yourself. It’s a pain.

    We’ve learned to look out for these terms: rolled oats, oat flour, hydrolyzed oats, and avena sativa. The avena sativa tends to be in things like moisturizers. Not sure of the nature of your allergy, but simply touching oats would make our daughter get a rash. If this is you, definitely look out for creams.

    Good luck!

  77. On September 4th, 2010 at 2:17 am Elizabeth said:

    Hi,
    we have three generations, at least, in my family with oat allergy. I now live in Australia where a lot of the doctors are very aware of food intolerances and allergies. I find it very frustrating to come back to the UK and find so many doctors are still resistant to accepting that it is a problem. If your doctor refuses to test your child then find another doctor. Keep looking until you find one who is interested,if you feel you need their input. At the end of the day it is is often easier to work it out for yourself. A lot of the tests don’t work very well. I didn’t find out what was causing my problems until I was in my twenties because there was no awareness of food effects when I was a child. If you haven’t suffered the oat rash then you have no idea how miserable it makes you. It isn’t just an itch, it affects your sleep, causes huge mood swings and just takes over your life. I know people keep getting told oats is a good food but if it makes you ill, it is a bad food for you. Doing without oats will not harm your child. Eating them might.

  78. On December 5th, 2010 at 8:34 pm Carolyn said:

    I just wanted to add my 2 cents that oat allergies can manifest as flatulence, abdominal cramps, and other unpleasant digestive issues. I was diagnosed with IBS for years. After an allergy test showed positive for oat I did the elimination diet. An oatmeal every morning kind of girl had to find something new because it turns out the oats were causing the IBS symptoms.
    NO good!

  79. On December 16th, 2010 at 4:24 pm Brookie said:

    Yes, yes and yes!!! Oats are evil! I can’t beleive the pain and swelling I’ve been having for the past three months because of an oatmeal-for-breakfast-everyday life. I’ve been to several doctors who tested for everything under the sun and couldn’t find the culprit, until I stopped eating oatmeal one weekend of brunches without it. I was fine in two-three days. I would get cramps, and a bad immune reaction in my abdomen that felt like IBS. (It wasn’t). I’m 54, BTW, and never had this kind of allergy where it was centered in my intestines, without causing other more obvious symptoms.

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